The Journey of James Weston

Sunday, February 6th, 2022 We went to the aquarium! It was great, because it was free! Bank of America card holders get in free the first Sunday of the month. But would we go again? Probably only on the first Sunday of the month. It's super small. A few touch tanks that obviously James couldn't reach. One small shark, a lobster, some big fish and a few manatee. There was a section called Florida Wetlands 🦆🐢🦤🐊where you experience 200% humidity indoors while looking at baby alligators, turtles, birds and ducks. It was like we were in our backyard at home. 😂 For some reason his ventilator alarm 🚨went off the entire time. We are thinking the trach is just positional and he needs a new cuff. James enjoyed the changing colors, dark rooms, and hearing different voices. When we arrived at the aquarium a fat (pregnant?) squirrel 🐿️ in the parking lot kept trying to run towards us. Dad tried to scare it off a few times, but it continued to run towards the stroller. We finally figu...

Saturday, February 5th, 2022 Mom and James had a good morning while Dad fed the homeless at the PB&J for Tampa Bay meet up. When he got back he played guitar for James. Music will get James' attention and focus. He could watch Dad for hours. Dad only knows three songs though, so please pray for Mom. 🤣 James recently learned to beatbox, so we posted a video below. We finally received our passy muir valve in the mail from our DME! Yay! We have a speech appointment on the 17th and James will get to try it out! James has been rolling a ton on his side, but only when he wants to. He doesn't like to be forced. So when you're not watching there he goes! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Friday, February 4th, 2022 This week completely drained Mom after following up with the DME on orders and dealing with insurance issues. She is looking forward to sleeping on Saturday night. No nursing tomorrow.  P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Thursday, February 3rd, 2022 Today James started the morning at 7am and we began on the floor. Mom worked with him on his tummy time. It's important for James to just lie on the floor and explore. Then he enjoyed his time in his bouncer and later practiced playing the piano. In the evening we brought James over to the kitchen table to sit with us at dinner. He had tastes of orange for the first time and loved it! 🍊 Thursday is trach change day and Mom and Dad had their 40th trach change, or something like that. No issues! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...