The Journey of James Weston

Monday, February 7th, 2022 Today, one of James' maternal great grandpas would have been 114! 🎉🥳 In the afternoon we got labs done at the hospital. This was to check on James' Sodium Chloride levels since we decreased the dose in half. It was a one stick blood draw because we had excellent IV team members available!  He did his 2 hour daily eye patching, spent time in his bouncer, and worked hard on his turnout. 😂 James has been putting more weight on his feet! Video below shows how aggressive James can get about trying to eat everything!  Mom received the new trach that she had to buy from eBay and immediately called ENT to schedule for appointment for the trach change and scope. They were able to get us in tomorrow morning! After seeing the return address label, Mom figured out this trach was being sold from a Trach Mom in the FB group. It's actually illegal to sell medical supplies that were covered by insurance, and pretty crappy to charge another Medical Mom. Everyth...

Sunday, February 6th, 2022 We went to the aquarium! It was great, because it was free! Bank of America card holders get in free the first Sunday of the month. But would we go again? Probably only on the first Sunday of the month. It's super small. A few touch tanks that obviously James couldn't reach. One small shark, a lobster, some big fish and a few manatee. There was a section called Florida Wetlands 🦆🐢🦤🐊where you experience 200% humidity indoors while looking at baby alligators, turtles, birds and ducks. It was like we were in our backyard at home. 😂 For some reason his ventilator alarm 🚨went off the entire time. We are thinking the trach is just positional and he needs a new cuff. James enjoyed the changing colors, dark rooms, and hearing different voices. When we arrived at the aquarium a fat (pregnant?) squirrel 🐿️ in the parking lot kept trying to run towards us. Dad tried to scare it off a few times, but it continued to run towards the stroller. We finally figu...

Saturday, February 5th, 2022 Mom and James had a good morning while Dad fed the homeless at the PB&J for Tampa Bay meet up. When he got back he played guitar for James. Music will get James' attention and focus. He could watch Dad for hours. Dad only knows three songs though, so please pray for Mom. 🤣 James recently learned to beatbox, so we posted a video below. We finally received our passy muir valve in the mail from our DME! Yay! We have a speech appointment on the 17th and James will get to try it out! James has been rolling a ton on his side, but only when he wants to. He doesn't like to be forced. So when you're not watching there he goes! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...