The Journey of James Weston

Friday, February 25th, 2022 Dad in left in the wee morning for the airport. 🛫❄️🎿  We moved the sleeping arrangement for Mom and James into the family room which is right next to the kitchen. It just made more sense to have his Pack N Play there since this is where we would mainly be gathering. Two nights in a row James has peed through his diaper and soaked the bed sheets. That is the reason for the multiple outfits changes. During the day James enjoyed a puppet show from Juju, teethed on a frozen wine glass, and got used to his new surroundings. In the evening, James had visits with friends and family.  P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Thursday, February 24th, 2022 First day at Juju's, James got to know his big brother, Tommy, the Chihuahua. Tommy really just wanted some of James' toys, especially the ones that squeaked. James just wanted to pet the dogs. James was much more interested in them during this visit. When he went to pet Champ James decided to go in for a tug on his love handle. Thank goodness Aunt Robin was holding Champ and he was chill. James did his Passy Muir and had tastes of apple. Dad will leave tomorrow morning for his boy trips to go skiing in Colorado. James will have lots of visitors this weekend! "Our Boys" Rough night with constant alarms 🚨 Dad before he leaves tomorrow morning for Colorado "First Look" Favorite toy is a water bottle! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Wednesday, February 23rd, 2022 We did it! We left in the late afternoon and got on the road for a 4-Hour drive. Mom packed the entire car by herself and it took 1 hour. Managed to fit everything like Tetris including but not limited to the oxygen concentrator, stroller, pack and play, two ventilators, two suction machines, four oxygen tanks, a pulse ox machine, a humidifier for the vent, his feeding pump, and all of our luggage. Mind you the supply inventory spreadsheet to pack for this trip included 104 things.  Video below shows how excited James was that we arrived at JuJu's. At first we thought we would be sleeping in the library but it turned out that the tiered car did not roll on the carpet, so we moved out to the hardwood floors near the front door. We setup Mom's air mattress and James' pack n play. James was ready to pass out because it was his bedtime. We use the massage table for his trach care and James fell asleep during. Eventually when Mom writes a "How...