The Journey of James Weston

Thursday, April 7th, 2022 Today Pop-pop would have been 70! James is doing well in his helmet and has been able to keep it on 23 hours with a 1 hour break for bath and trach care. He loves water bottles or empty jugs. James had a visit from the female Cardinal. He is paying attention to the birds at his window. The helmet makes him so sweaty so we are allowed to have 5 minutes breaks to let things dry. We may end up trimming his hair to help with the sweating. Mom tried to work with him on tummy time and putting pressure on his arms.  For dinner James had purees tastes and decided he wanted to bite through a tangerine 🍊. Yes, his 7 teeth took the rind right off and Mom quickly grabbed it out of his mouth. James also thinks it's funny to throw his toys on the floor.  P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Wednesday, April 6th, 2022 Today James' helmet was delivered to the helmet office and we went in to get fitted and pick it up. Every helmet is shaped for a perfectly round shaped head. The idea is that the helmet will allow the flat parts of the head to grow, and restrict the other parts. Heads grow about ½ inch each month while they still have a soft spot. As a 15 ½ monther (1 year adjusted) James is coming in late to the game. Most are getting helmets between 3-6 months, which is exactly when we first noticed James' plagiocephaly and torticollis. This just wasn't a priority at that time. James did great! We have instructions on how to care and wash for the helmet and James. We also have James on a "weaning onto" schedule, where he wears it for a few hours and then has a break. We will come back for a follow up appointment ina week to see how its fitting and if needs to be readjusted some more. P.S. You can email James your love and support as often as you’d like...

Tuesday, April 5th, 2022 James had his 15 month check-up where they did his 12 month developmental assessment. They said he improved from the last assessment. He was supposed to get vaccines as well but they decided to hold off since he was still.on the antibiotics. We rescheduled the vaccines for a week from now. We asked the pediatrician if she knew of any other places we could take a medically complex baby and she let us know of the Glazer Children's Museum. It just so happened to be free on the first Tuesday of the month, so we stopped by! James wasnt really able to enjoy it since he's still tethered to the stroller but definitely after he gets off the ventilator he'll love it! It's like an educational Chuck E Cheese. Dad was ready to play! James cracking up at this dog! James sets himself up like this! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz...

Monday, April 4th, 2022 Megan ended up getting another flight back to Dallas in the morning. In the afternoon Uncle Doug stopped by while he was in town. James' battle wound for Friday Night in the PICU. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com