The Journey of James Weston

Sunday, April 10th, 2022 Today Dad spent the day at the office running a staff meeting. Mom and James spent the day together. We are still taking a break from the helmet since the red spots are still present.  P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Saturday, April 9th, 2022 Dad gave Mom an option to get a break out of the house by helping him move out of his office. So she took on this project and enlisted two former Cutco guys to help her move the big stuff Dad wanted to move into a storage unit. His lease was coming to an end and he has been doing everything remotely for the past few years anyways. If you need office chairs or a large conference table, come on down! They will be donated at the end of April. James spent the day with Dad. Of course this involved watching some Disney and chilling like a Big Boy. 😂 P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Friday, April 8th, 2022 We noticed these red spots James was getting on his head so we emailed our helmet person and she let us know that unfortunately no one was in the office locally. We would need to drive across the bay to the only location that had someone working today. They ended up shaving down the helmet a bit more in those spots. In order to do that we had to put lipstick on his head and then put the helmet on. When she took it off, she knew where to file it down. The helmets are made to his head shape, but since his head has continued to grow there are parts that are rubbing. It's a fine line between shaving too much and allowing the head to grow misshapened or shaving too little and getting skin breakdown. During this appointment, James' circuit became disconnected while Mom was holding him. When you are holding him, you don't have extra hands. So Mom immediately laid James down on her lap to reconnect. This helmet lady was shooken up at what just happened and g...

Thursday, April 7th, 2022 Today Pop-pop would have been 70! James is doing well in his helmet and has been able to keep it on 23 hours with a 1 hour break for bath and trach care. He loves water bottles or empty jugs. James had a visit from the female Cardinal. He is paying attention to the birds at his window. The helmet makes him so sweaty so we are allowed to have 5 minutes breaks to let things dry. We may end up trimming his hair to help with the sweating. Mom tried to work with him on tummy time and putting pressure on his arms.  For dinner James had purees tastes and decided he wanted to bite through a tangerine 🍊. Yes, his 7 teeth took the rind right off and Mom quickly grabbed it out of his mouth. James also thinks it's funny to throw his toys on the floor.  P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Wednesday, April 6th, 2022 Today James' helmet was delivered to the helmet office and we went in to get fitted and pick it up. Every helmet is shaped for a perfectly round shaped head. The idea is that the helmet will allow the flat parts of the head to grow, and restrict the other parts. Heads grow about ½ inch each month while they still have a soft spot. As a 15 ½ monther (1 year adjusted) James is coming in late to the game. Most are getting helmets between 3-6 months, which is exactly when we first noticed James' plagiocephaly and torticollis. This just wasn't a priority at that time. James did great! We have instructions on how to care and wash for the helmet and James. We also have James on a "weaning onto" schedule, where he wears it for a few hours and then has a break. We will come back for a follow up appointment ina week to see how its fitting and if needs to be readjusted some more. P.S. You can email James your love and support as often as you’d like...

Tuesday, April 5th, 2022 James had his 15 month check-up where they did his 12 month developmental assessment. They said he improved from the last assessment. He was supposed to get vaccines as well but they decided to hold off since he was still.on the antibiotics. We rescheduled the vaccines for a week from now. We asked the pediatrician if she knew of any other places we could take a medically complex baby and she let us know of the Glazer Children's Museum. It just so happened to be free on the first Tuesday of the month, so we stopped by! James wasnt really able to enjoy it since he's still tethered to the stroller but definitely after he gets off the ventilator he'll love it! It's like an educational Chuck E Cheese. Dad was ready to play! James cracking up at this dog! James sets himself up like this! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz...