The Journey of James Weston

Sunday, April 17th, 2022 James had a good Easter with Aunt Taylor, Uncle Mark, and Cousin Makenzie visiting for the holiday!  Fixing his eye and his head at the same time! He found his sound machine! James wanted to feel the vibration on the nebulizer P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Saturday, April 16th, 2022 Dad left for a hotel to relax before his trip to New Jersey. James spent the day with Mom, Juju, and Aunt Robin getting puppet shows, visits from the dogs, and exploring new toys (well they're Mom's old toys!). Juju and Aunt Robin helped Mom with trach care and a bath in the evening. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Friday, April 15th, 2022 Today we headed to Jacksonville. Dad has a trip planned in New Jersey to see family and kids flying out of Jacksonville so he could drop off Mom and James at Juju's. We got in pretty late! The rule is to never wake a sleeping baby. Well he ended up waking up, so we did trach care around 12am. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Thursday, April 14th, 2022 We went in for the helmet appointment and she shaved down some more in those 2 spots. It was very apparent James wore the helmet last night for sleep. The spots were very red. 😥 We will see if this fixes it! Mom tried to find out where she can purchase James' new formula (photo below). It seems as though this is prescription only. We are waiting to hear if our DME supplier will be able to ship this to us. It will probably take weeks to hear from them, as always. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...