The Journey of James Weston

Tuesday, May 3rd, 2022 Today Huggies gave James a shout-out on social media because Dad tagged him in a photo with some brands names. See post below. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Monday, May 2nd, 2022 James played a lot with his toys. Mom worked on insurance issues, supply orders, and doctor appointments. You know besides laundry, meds, bottles, dishes, feedings, G-tube venting, the usual. If you find yourself with nothing to do, then you're forgetting to do something. Over the weekend James' suction machine died. This is an emergency, and can be a life or death situation. A patient can get a mucus plug or choke on their secretions. Without a working suction machine, you would need to disconnect the patient from the ventilator and use a catheter to suck out any secretions with your mouth. It is awful but in an emergency you will do what you need to do. It turns out the DME supply company does not have any portable back-ups. Not surprising whatsoever! They do have a non portable suction machine, the size of a car engine and sounds like a lawn mower. They said they could send someone from Melbourne by this evening to drop it off. Well the delivery driver ...

Sunday, May 1st, 2022 In the morning James did some yoga and got in a workout with Dad. Video below. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Saturday, April 30th, 2022 Dad had James on floor doing his exercises. He has mastered how to roll onto his back. Now we just need him to figure out how to roll onto his tummy. Between his GJ button painfully sticking out and getting caught up in the tricky circuit, it isn't easy! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Friday, April 29th, 2022 Physical Therapy is always Friday morning at 8am. James is not really a morning person, so PT is always a little slower on Fridays. He is learning how to scoot. We need to get James more mobile. In the afternoon, Mom finished up moving Dad out of his office. Moving is exhausting, so for an early Mother's Day Dad sent Mom to a hotel for two nights by herself. This was the best gift ever! James will have a boys weekend with Dad. Of course Mom will come back for trach care. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Thursday, April 28th, 2022 Today was James's follow-up helmet appointment! She shaved down 3 spots that have really been making his head turn red. Two of those spots are now bald and there are no hair follicles. 😥  James rocked his new Ledd Zeppelin Tshirt from Aunt Robin. The easiest outfits right now are t-shirts and shorts or rompers. The helmet people said they do not want him in pants or long sleeves due to overheating. Even though we have to disconnect his circuit to pull a t-shirt over his head, it's much easier to access his G-tube site which we now have to do often. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com