The Journey of James Weston

Saturday, May 7th, 2022 James had his first trip to the mall. We went to Carter's to get him some shorts and tanks. Besides having BPD the helmet also makes James run hot. The helmet office said to keep him as cool as possible. Oh and it's Florida. It's always 100°. 🥵 Look out for a bunch of cute outfits in photos! Fun Fact: At closing time you can ask Auntie Anne's to make you a pizza with the leftover dough. A whole pretzel pizza! We didn't get it (long story) but the guy was making it. 😂 Bringing James over to the table for breakfast! Mom's hack for cleaning syringes. Morning nap. Chillin at the food court! How cute is this outfit! Being sneaky! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Friday, May 6th, 2022 Spending more time on the floor and out of bed, dumping out his toys. James took a look at the bills. He couldn't believe the co-pays. James also enjoyed tickles before bath time and wanted to make we got his clapping on video. We finally received our Aerogen Nebulizer which we paid out of pocket for. 💲🧾💰 It turns out it didn't come with one of the major cables. It was advertised incorrectly! So we are on a hunt for this now. By the time we get this working James will be decannulated! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Thursday, May 5th, 2022 Believe it or not, James put the guitar in this position (it's actually a ukulele). He is practicing to be like Dad, playing music and reading books. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Wednesday, May 4th, 2022 May the Fourth Be With You! James revisited with a couple of old friends, Teddy and his NICU Octopus. The key is to hide some toys and then after a few months it's the best toy ever again! Update: Still have a broken backup ventilator. Still waiting on a portable working suction machine. We haven't received G-tube extensions or Farrell bags since January. Supposedly G-tube is on back order and the bags are not getting approved by insurance. Insurance is supposedly given our DME a hard time about approving his new formula. These are all issues that we have to deal with our DME to get fixed. When we contact our Medicaid Case Manager she just says everything should be approved. And with past experiences, issues always fall to our DME.  P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10...

Tuesday, May 3rd, 2022 Today Huggies gave James a shout-out on social media because Dad tagged him in a photo with some brands names. See post below. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...