The Journey of James Weston

Monday, May 9th, 2022 Three videos below. James was making a lot of noise (and some crazy faces) with his inflated cuff in, so Mom did a Passy Muir Trial. Even though James is able to make noise without the PMV, he needs to get used to the feeling of having air move through his nose and mouth. Then James did his nightly ab workout by lifting his legs slightly off the bed making little circles. This is his way of communicating to us that he is tired. 😆 He is going to have one strong six pack! 🏋️‍♂️ P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Sunday, May 8th, 2022 Today James tried out his big boy stroller seat for an outing! It took Mom and Dad a while to agree on the setup in the parking lot (🥵) because originally we wanted him facing forward, but that made everything backwards. It is safer to have him facing the person pushing the stroller in case the trach comes out. However the ventilator is hanging from the handle bar blocking his view. 🤷🏻‍♀️ James was still able to see a lot more than being in his car seat. We went to the Aquarium and then Dad thought it would be a good idea to take a stroll down to Sparkman Wharf to grab some food after the Aquarium closed. They have a bunch of food trucks and restaurants. It was about 120° outside and in the early evening the Wharf turns into what seems like an open bar at a wedding. Needless to say the wait time was an hour to get a table anywhere. Dad decided to grab a scooter back to the car which was almost a mile and pick up Mom and James. Once he got to the car he realized...

Saturday, May 7th, 2022 James had his first trip to the mall. We went to Carter's to get him some shorts and tanks. Besides having BPD the helmet also makes James run hot. The helmet office said to keep him as cool as possible. Oh and it's Florida. It's always 100°. 🥵 Look out for a bunch of cute outfits in photos! Fun Fact: At closing time you can ask Auntie Anne's to make you a pizza with the leftover dough. A whole pretzel pizza! We didn't get it (long story) but the guy was making it. 😂 Bringing James over to the table for breakfast! Mom's hack for cleaning syringes. Morning nap. Chillin at the food court! How cute is this outfit! Being sneaky! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Friday, May 6th, 2022 Spending more time on the floor and out of bed, dumping out his toys. James took a look at the bills. He couldn't believe the co-pays. James also enjoyed tickles before bath time and wanted to make we got his clapping on video. We finally received our Aerogen Nebulizer which we paid out of pocket for. 💲🧾💰 It turns out it didn't come with one of the major cables. It was advertised incorrectly! So we are on a hunt for this now. By the time we get this working James will be decannulated! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...