The Journey of James Weston

Tuesday, June 7th, 2022 The morning started with changing James' outfit and the sheets. Unfortunately the overnight diapers, even with changing it in the middle of the night at 3am isn't making it through to the morning. Little boys find a way to get pee everywhere but in the diaper. Then James enjoyed some time in the ball pit! He is still tolerating his new vent settings! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Monday, June 6th, 2022 We had James' pulmonology appointment in the afternoon and we received great news! We were able to make a wean to the ventilator settings. We decreased the pressure support by 2 from 20 to 18. We asked about how far the pressure support and the peep has to go down and he said 15 is pretty low for the PS and as far as the PEEP he isn't concerned about lowering it. The pulmonologist said that in 2 months we could start trials off the vent and work up to see where we are in December! These would only be for a few minutes a day to start. 🫁 So our next appointment in in August! Dad: "Doc, so can you tell me what time line you're thinking of for him getting off the vent?". Mom: "It's all been guessing game, right? It's like asking when you're going to be discharged from the NICU" Doc: "She's right". Because he can't promise a timeline. He is just guessing based on previous cases he's seen in the past. ...

*Please note if you are reading this update in your email as a subscription to "The Journey of James Weston" blog it does not show the videos uploaded to YouTube. Please click here ( bit.ly/JamesWestonBlog ) to go to the blog directly. Sunday, June 5th, 2022 James' day with Mom involved lots of playing and naps on Mom's bed. He has been trying to wiggle off of locations that are too high for him like his crib, mom's cot, and his big boy chair. We recently figure out a schedule that works for our family which allows Mom and Dad a 24 hour break each week. Between Friday, Saturday, and Sunday we each get a day to ourselves and the 3rd day is a Family day. Tomorrow James has an appointment, which automatically makes that Family day. This is his long awaited Pulmonary appointment! *Last week we suspected James might be sick so we submitted a sputum culture to the hospital lab. The good news is that it came back as normal and shouldn't prohibit us making weans to th...

Saturday, June 4th, 2022 Today James spent the majority of the day with Dad and sat in his comfy chair for the first time! Thanks Janet, James' 1st cousin once removed! 😂 Since he has total control of sitting up now he will be able to use this regularly. 😁 Yes you'll see in the photos that Dad put the chair in the medical crib. He was testing to make sure James would sit in it before moving all of the tubes and cords to get him on the floor, but he ensured that he was watching him the whole time. 👀 James is very active now wanting to move around, wiggle, almost crawl, now more than ever we have to have all eyes on him! 🤸🏻‍♂️ P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

*Please note if you are reading this update in your email as a subscription to "The Journey of James Weston" blog it does not show the videos uploaded to YouTube. Please click here ( bit.ly/JamesWestonBlog ) to go to the blog directly. Friday, June 3rd, 2022 When James isn't playing with Nemo and Dory in the bath you can find him using them as teethers. Thanks Beverly for these! 🐠 🐟 James had successful food tastes of green beans for "dinner" and really enjoys when Dad plays airplane with him. ✈️ He is a Daddy's boy! On a side note, we are waiting for a plumber and AC guy to come out. Yes, our AC and a toilet broke. 👨‍🔧🧰🔧 But man, it's nice to be in a rental! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com