The Journey of James Weston

Saturday, July 2nd, 2022 Dad watched James for the day while Mom got a break. He still had a little fever so we continued the medicine. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Friday, July 1st, 2022 We moved out physical therapy appointment from the morning to the afternoon because there was an opening. This will be great moving forward. We worked on standing today and enticed him with Mega Bloks (big Legos) that the PT brought. James absolutely loved them. We used his big comfy chair as something to climb as well as had him sit on a plastic container to get into a seated position to be able to get flat footed. James has not crawled yet because he hates being on his tummy. His GJ button not only leaks horribly but it sticks out way too far still. Even though we are skipping an important developmental stage all babies need to learn to stand by a certain age to form their hip bones. The long bone in the thigh has a smooth round end that attaches to the hip like a ball in a socket. Standing and taking weight through the feet help this joint to form normally. Children who do not spend enough time standing on their feet can develop hip problems as they grow older...

*Please note if you are reading this update in your email as a subscription to "The Journey of James Weston" blog it does not show the videos uploaded to YouTube. Please click here ( bit.ly/JamesWestonBlog ) to go to the blog directly. Thursday, June 30th, 2022 Today James is 18 months (14 ½ adjusted). It's crazy to think that a year ago we were leaving the NICU for good and moving to the PICU. That was such a hard transition and the longest 2 ½ months. In the afternoon, Dad gave James a guitar lesson. James is really improving. Video below. 😁 He also sported his bib as a visor and took a nap on Mom's bed. His new favorite toy is the pulse ox. He is determined to get it open and apart. Luckily this is even tricky for adults so we don't have to worry for a while. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Wednesday, June 29th, 2022 James   started doing something new, kinda like a Jazz move moving his body with his head up and down in a jerky motion. We think he is just figuring out all the ways he can move versus trying to tell us "Yes". He now repeats when Mom does this, so it has become a game. You may have noticed that in previous photos the sun has been in James' eyes in the morning. Well there is a half moon window above his crib in the living room and not only does it shine a bright light in the morning it also makes the room super hot. Mom installed a fabric shade that can easily be opened and shut when needed.  Today we finally had Physical Therapy after not having it for 2 weeks because of Covid and being out of town. We are focusing on increasing weight bearing in both his arms and feet. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Tuesday, June 28th, 2022 In the morning, there is half moon window with an Eastern exposure above James' crib that shines light right in his eyes. Mom will be fixing this soon! Today Dad played the guitar for James while he used his new tambourine from Juju. 🎶 James is now wanting to use 2 bean bags as weighed blankets on his face while he naps. Don't worry he is breathing through his neck! 😂 Oh trach life! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Monday, June 27th, 2022 Dad's flight in late last night. James was already sleeping. We left for Tampa in the afternoon so not to be driving too much in the dark.  Before we left Juju got in some snuggles with Jamesy. He also tried on some cool sunglasses! James loves clapping so much because we have recognized him for it every time. He will clap if you say "Clap", "Good Job", "The End" but he will also clap when he likes something or enjoys what he is learning. 👏 P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com