The Journey of James Weston

Sunday, July 17th, 2022 ✔️ Brunch at a fancy hotel 🍳👨🏼‍🍳🥐🥓🥞🍍 We took James to a hotel on the bay that had an amazing buffet. James had tastes of mango 🥭 and pineapple🍍. He eventually fell asleep since it was in the middle of his nap time. Mom changed his diaper in the handicap stall of a women's restroom since there was not a family restroom. Needless to say it was a big ideal. Trying to open three of the heaviest doors in the world and pushing through an extra long double stroller. Then dealing with five different cords and tubing while James is getting stronger kicking and sliding all over. Afterwards we took a rest in the lounge area to charge up some equipment before making our way outside. Dad wanted to show us this wonderful scenery he found on a stroll he once had. The temperature was around 107°.  ✔️Trip to the mall to make a return 👕☕💊 🧢💉 We took James to the International Mall again since we needed to do something indoors due to the heat and daily thundersto...

Saturday, July 16th, 2022 Mom popped by Ikea and reorganized James' toy shelf with some shelf inserts. His room which is essentially out living room is 90% ICU and 10% Playroom. His storage closet which is full of supplies was also improved with some bigger storage bins (Drona). We highly recommend the Ikea Kallax Shelf Units. We have 4 throughout the house.  James spent the majority of the day with Dad trying on socks to make sure we had some that fit. It's Florida and with BPD James doesn't wear socks, but Mom was out buying a pair of shoes for James. His first pair! The physical therapist recommended that we get a hard sole shoe for James to try standing in. His foot measured an adorable 4.5 inches. Mom ended up finding 2 pairs on sale Sizes 4 & 5. 👟 They are probably still too small but Size 3 shoes do not exist with hard soles. Baby shoes are soft like socks. James is a Baby Toddler. P.S. You can email James your love and support as often as you’d like. Mom and Da...

Friday, July 15th, 2022 Last night we made it home just in time to suction James. Dad ran back out to grab the antibotic that was called in to the pharmacy while Mom started on nightly trach care. James' sputum culture 🧫 came back positive for the following... -Moderate Growth Klebsiella oxytoca -Moderate Growth Stenotrophomonas maltophilia -Also: Heavy Growth Mixed endogenous microbiota present These strains are gram-negative, rod-shaped bacterium. James is colonized with Klebsiella, this means that every time he gets a sputum culture this bacteria will be there. We don't necessarily need to treat this bacteria with an antibiotic. However "Steno Malto" is pretty serious and resistant to a lot of antibiotics. It is bacterial species associated with mold. It's an uncommon bacterium and human infection is difficult to treat.  Mom had scheduled an afternoon appointment with Lapcorp to also get checked for mold infection. While she was out she had to stop by the GI o...