The Journey of James Weston

Tuesday, August 2nd, 2022 Today James had his procedure at the hospital. Even though it was supposed to be a quick and easy procedure it turned out to be a very long 7 hour event! It started out not being able to find a handicap parking spot at the Children's Hospital. Every single one was taken up on all three floors of the parking garage. For us a handicap parking spot is absolutely necessary to get James out of the car. We need the extra space to open the car door all the way to get his equipment out. Yes, there is a possibility that every single one of those spots was being occupied by someone who truly needed it. However there is a higher probability that people are taking advantage of having a handicap permit. They either don't have the handicap person with them or they just simply don't need it! This is a Public Service Announcement for anyone that you know that is guilty of this! So because we could not find any parking at the Children's Hospital we decided to d...

Monday, August 1st, 2022 These next 2 weeks are pretty busy with several doctor's appointments lined up. Tomorrow James is getting his GJ replaced. Today we had a helmet in the morning. We found out our helmet therapist is moving in a month. So we scheduled a follow-up with her on her last day for possibly our last appointment too. We will do a head scan on that day. Today she just filed down parts of the helmet that were rubbing on his head. She could tell just by the discoloration inside the helmet. We also repositioned the foaming pads in the front that was causing some irritation. We also had our physical therapist come today instead of Friday this week. However today was a little different because she brought along a speech & feeding therapist for a consult. This is also through Early Steps and not the hospital and will be once a month. This is a huge game changer because we don't need to drive away to the hospital for a speech appointment through Baycare. Our physical...

Sunday, July, 31st, 2022 Did you know that Baby James has haters on YouTube? People wanting the parents to know they disliked their video of their medically complex baby. How miserable their life must be! We've never met anyone like that face to face. These "keyboard warriors" unfortunately is the new generation of bullies. We just have to remind ourselves that it has nothing to do with anything but themselves and how sad and unhappy they are. On a positive note, people from all over the world will leave nice comments. Just take a look below at how James is already impacting others in the trach community. ❤️ This is why we share James' journey publicly. The video that this man commented on is from 10 months ago when we were just discharged from the hospital.  Not much of an update for Sunday the 31st other than Dad watching James for a few hours while Mom ran some errands. Dad taught James about making change and letting him know that he did not have enough coins for ...

*Please note that our blog hosting site (Blogger) has stopped emailing blog updates. If you were subscribed to this blog via email you have not received an update in your inbox in a couple of weeks. We are in the process of integrating with a new platform to allow email automation again. Saturday, July 30th, 2022 James spent the day with Mom playing with his toys, working on his physical therapy exercises, and eye patching. James actually wore his eye patch the entire day from 10:30am until the evening. There are 3 videos below: James learning how to sit up on his own, James showing us his favorite number, and lastly Mom performing a solo trach tie change. James still needs assistance to sit up but it won't be very long that he will be pulling himself up so we are at the point now where we are putting the railings up higher on his medical crib. Dad came home very late from his work trip and James was already asleep. Tomorrow Mom will get a break for a few hours. P.S. You can email ...