The Journey of James Weston

Wednesday, September 21st, 2022 Our AC broke again! 🥵 At 4:30am this morning Mom was changing James' diaper and realized it was really warm. It got to about 85° and it was only warm air blowing. Mom turned on a fan and removed James' blanket. After pouring bleach and vinegar down the drain line thinking maybe it was clogged, nothing changed. Dad contacted our landlord in the morning and luckily enough he had an AC repairman out right away. It was the "freon leak guy",. After finding out it was a broken condenser it took a several hours for the house to cool down and expelled the hot air.  We ended up moving PT to this morning since tomorrow we have a GI appointment that conflicted with our normal schedule. It was a pretty busy day since James only had a 2-hour break between therapy appointments and that is also when our RT stopped by for a ventilator check. His early intervention appointment was still scheduled for the afternoon. James managed to get a nap in between...

Tuesday, September 20th, 2022 Today we had physical therapy and then right afterwards we had a speech consult. Both early steps therapists were there so it was a total of 3 therapists. We did the 10 minute trial off the vent during the speech appointment. We also discussed a few things, like not going backwards in using a bottle and instead go straight to a using a cup for drinking and not using the sign "please" for "help" as this can get confusing later. James showed her what signs he can do and she was impressed since he wasn't doing this in the last visit. We talked about letting James make a mess when he is trying new food so he can learn new textures. In the evening James tried peaches for the first time and just about finished half of the container. 🍑 P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Monday, September 19th, 2022 James and Mom spent the day together as Dad had the day off. Recently James has been very interested in touching our faces. He is curious in learning the parts of the body. James had been doing great with his 10 minute trials off the vent. Tomorrow will be the first day he experiences PT while doing a trial. James touching Mom's face while he watches a video. Anything new is the most interesting to James! Evening 10 minute trial off the ventilator. James going in circles on his bed. James not wanting to go to bed! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Sunday, September 18th, 2022 We got a late check-out of the hotel after venting him for several hours. When we got home we gave James a bath and took several post bath photos.  Ready to go home! The many faces of James 😋 P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Saturday, September 17th, 2022 James had a great night sleep! Mom and Dad took turns going downstairs for breakfast 🥞🍳, since it didn't make sense to pack everything up for that. James experienced watching Saturday morning cartoons sitting in front of a huge flat screen TV. Then we watched the Notre Dame ☘️ game and James took a nap. He played with his new busy book and puzzles 🧩. We had a beautiful rainbow 🌈 show up in our view. James also figured out that the remote control is really important and must be held at all times. 😂 Rigging up a portable medical equipment cart. James doing some physical therapy stretches. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com