The Journey of James Weston

Tuesday, November 8th, 2022 Mom drives James back to Tampa solo. The 3½ hour drive home only took 6 hours with 6 stops, 2 diaper changes, James crying the entire time causing secretions, iPad died, suction machine died, ventilator died twice (even after battery replacement), and lastly James continuously ripping off his pulse ox sensor monitoring his stats. But he did sleep for the last 20 minutes. It was rough! 😩 The worst part was that he just wanted someone in the backseat with him. 🥹 Mom wouldn't have done this last year but James is very stable now. It was mainly just really inconvenient. He was super safe and we would always waited to get off an exit instead of on the side of the highway. We definitely have so much respect for all the single moms out there with medically complex kiddos. They don't have a choice but to do this. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! J...

Monday, November 7th, 2022 We took James off the vent for 2 hours and had him sit with us at the table while we were out. Video Below of James Dancing, Blow Kisses, & Eating an Orange @ Le Petit Paris in Jacksonville, FL James had to pinch himself that we was off the vent! Tasting an Orange 🍊 Dancing P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Sunday, November 6th, 2022 In the morning, James play with his toys and the remote control which is his favorite. When the dogs woke up James was so excited to see them! He is getting more and more comfortable being around them. They're also more comfortable with James. Once in a while James will try and sneak in a pet when he thinks that they aren't looking at him. As soon as they turn around James will stop. So he's not one of those toddlers that just squeezes the dog until the dog wants to bite them. James very much is gentle and cautious. We took James on a trip to IKEA! He did really well probably because he was constantly stimulated with so much to see!  In the evening, mom tried a different brand of pregnancy tests and ended up getting a much darker line! Thursday will be the official blood test of the clinic but we are already celebrating over here! 🥳🤰🏻🥰 Off to IKEA Changing feed bag in the bathroom Walking through kitchens and living rooms He thinks he needs th...

Saturday, November 5th, 2022 Today Aunt Taylor and Uncle Mark came over for the Notre Dame game!☘️🏈 Aunt Taylor got some snuggles in with James and assisted with trach care. James learned that every time he saw football that he should start clapping. 👏 🤣 On another note, Mom finally got a very very faint line on a pregnancy test. Today was 4 days past the transfer and is the earliest that you would typically see anything. So fingers crossed that lines continue to get darker! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com