The Journey of James Weston

Tuesday, November 22nd, 2022 Prepping for Thanksgiving! James helped mix things up in a bowl with his spoon. He also worked on the fruit salad. James is now up to 4 hours off the ventilator twice a day! We started it yesterday. So that's sprinting for 8 waking hours. We even have James napping off the vent and he is doing great! Next step is to speak with our pulmonologist over the phone on the 28th to talk about weaning on the nightshift!  P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Monday, November 21st, 2022 Relaxing in Jacksonville waiting for Juju and Aunt Robin to return from Savannah.  P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Sunday, November 20th, 2022 Today is Aunt Robin's Birthday! 🥳🎂🎉 In the afternoon, Dad's family from New Jersey stopped by as they were nearby at Disney World. James got to meet his Aunt Debra, Uncle Frank, Cousin Abigail, Cousin Gabrielle, Cousin John, and Baby Jordyn. Jordyn is technically James' cousin 1st cousin once removed but most people would probably just say 2nd cousin. 😂 James and Jordyn played nicely together sharing toys and even dancing to some music. Cousin Gabrielle gave James a much needed haircut 💇🏻‍♂️ and showed Mom how to use the clippers. ✂️ So cute! Afterwards we went out to dinner and James really needed a nap.  When we got home we still had about an hour of packing up before getting on the road to Jacksonville. Mom noticed that the pulse ox alarm was going off and James sounded and looked like he was having trouble breathing. We noticed that he was pulling at his 2x2 split gauze under his trach and it was bunched up in a ball lifting his trach u...

Saturday, November 19th, 2022 Today Dad watched James for a few hours. He loved typing on the keyboard and scooting around his nursery. Then he napped while Dad watched a documentary. 🎥 It was a lazy Saturday.  Tomorrow Dad's family visits from New Jersey! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Friday, November 18th, 2022 After a long day of playing, we decided to do Family Dinner Night tonight instead because it worked better with Dad's work schedule. We ended up at Bonefish, because it was just one of those weeks and we deserved it. James was dressed for the occasion in his sweet sweater embroidered by Aunt Robin. James was off the vent for his 3 hour trial, so we just carried him in and sat him in a highchair. It is the most amazing feeling to leave the ventilator in the car and just carry your baby. We don't know anything different with James being our first. Sometimes difficult experiences make it much easier to find gratitude! James was such a big boy playing with his crayons! Thank goodness the table cloth is just more paper. James was great at first and then he didn't want to sit in the highchair anymore. Mainly because it was just getting too late and he was tired. Once we got home James joined Mom and Dad for some Gin Rummy. P.S. You can email James your...