Day 7: Peekaboo

https://drive.google.com/uc?export=view&id=15Ywjs31L7JELDBjtOVvliobBwzCsMob8

1/6/21 - Wednesday

Mom got 8 pumps done yesterday and had her best yet this morning with 51 ML in one sit. Woo hoo!  She’s rocking the pump.  Baby James had his first “bath” this morning. They use little cotton balls and wiped him down. He had a busy night getting all of his lines updated and adjusted, so he deserved a little TLC.  He’s now nestled up on his left side and resting. The nursing staff has been outstanding so we are buying them all egg sandwiches from The West Tampa Sandwich Shop (#ShopLocal #SHOLO) - best in town!  

Baby James also peaked out through his right eye today! Our baby boy is already flirting with the ladies, says Nurse Julie. 

10a - James is peeing well. He’s stopping dopamine since blood pressure mean is approx 40 vs his age of 26/27 weeks, which is excellent. Bowel movement twice in a day, so increasing food. Getting info today on PICC line instead of the bellybutton IV to get more TPN nutrition for the next several months if needed. Tomorrow will get ultrasound of brain to see how the blood vessels are doing. If good, can removed the tortle (head positioner). Once off of the ventilator, baby James can do skin to skin with mom. At his current pace, this can happen in 2-3 weeks.
https://drive.google.com/uc?export=view&id=1uL1xsIRmUP4GTydzzl7PerfUwC5y8VQ- 

3p - Round 3 knockout for the diaper change by Lindsay!  A flawless approach as Baby James got a clean wipe and new diapy. During his tube adjustments, James tightly gripped on dad’s finger for the most adorable photo opp. After the adjustments took place, he devoured his 3 ML of milk and is now off to his nap. He’s doing great.   He’s now getting an increase of 1 ML every 12 hours. He had 4 ML tonight. And will increase from there. #Progress 






Comments

Post a Comment

Popular posts from this blog

First Full Day of Pre-K 🎒 🟰 Off of Oxygen!

Image
Yesterday was James's first full day of Pre-K! For the past 2 months, James has only been able to do half days because of nap time; he required oxygen while sleeping. The great news is that James is now officially off oxygen completely! Also, we have worked with our GI team and the school nurses for them to be able to administer G-tube feeds at school, so he can stay a full day! It's so important to take the time to celebrate the wins because with a medically complex kid, there is always something to be working on! 👍🏻 From ventilator weaning to stopping the ventilator completely, to scheduling decannulation, to getting the trach stoma closed, to graduating from a GJ to a G-tube, to getting off of oxygen... It feels never-ending! That is just the medical side of it. There are also those normal things like walking, talking, eating... James has done great with those as well and cognitively he is acing everything! I recently saw a post from John Israel talking about perpetual dis...
Read more

James Takes His 1st Independent Steps!

Image
Today was Day 7 out of 15 of James' Intensive PT/OT at Wolfson's! Taking his first independent steps! 😭😭😭 Thank you everyone for the love and support! This summer has been INTENSE between learning how to walk and weaning off the feeding tube! Huge progress though!
Read more

Ella is 6 months old!

Image
Ella at 4, 5, and 6 months (and some extras)! Wow time is flying by because in 2 weeks she'll already be 7 months! 😱 She is such an easy baby! I don't mean because there isn't medical stuff because James was soo good too. Ella is just so chill. She can hang. Always smiley and content. Currently she has been making James laugh so hard! It is the best thing ever and one of these days I'll get it on video. James continues to be so sweet with her and I'd love for this to last forever!🤞🏻🤣 Soo much to update! Life has been great! If I ever find some time I would love to! ✌🏻❤️
Read more