Day 69 - Better Eyes, More Blood, & Bigger Guard

Tuesday, March 9, 2021

Update:  James woke up this morning to a busy day.  It started with him getting his bi-weekly ROP test (eye exam). The results came back slightly improved, but mostly the same as last month (Stage 1, Zone 2) which is good.  He also got a new neobar that’s slightly larger (and pink) which is helping with his face not get irritated.  It seems to be a much better fit!  And pink is the new blue, so it’s all good.  🤷‍♂️ 

James also had a need for a Blood transfusion. He got 35 MLs. After 4 hours of steady blood flow and his poor little hand having the IV in it, James was able to do skin to skin with Mom for 3 hours. 

James weighed in last night at 2220g or 4 pounds 14 ounces.  He’s maintaining his feed at 42 MLs and is having steady bowel movements. Overall, James had a solid day and is recovering smoothly from the NIV the other day. 

https://drive.google.com/uc?export=view&id=1I5gdHPmg1HsCzqbJ6qDS58edat-h19Hxhttps://drive.google.com/uc?export=view&id=1MC-18gSz2OanjV9KMKAVhMKMls-iiyg9https://drive.google.com/uc?export=view&id=1dJTRxWCMyfgIHqouFoHOmeFo8S47UUnJhttps://drive.google.com/uc?export=view&id=1OAvWOjR4OshrB-vUsV7qIRpKH2h1XccOhttps://drive.google.com/uc?export=view&id=1oNtKkAVFpGTQe6DcFtTtDVADsYHONY4Nhttps://drive.google.com/uc?export=view&id=1HhYVRftMghugxIwmOBcsw4_KwJ4du7pI



P.S. You can email James your love and support as often as you’d like:  JamesWestonAbramowitz@gmail.com

Comments

Post a Comment

Popular posts from this blog

First Full Day of Pre-K 🎒 🟰 Off of Oxygen!

Image
Yesterday was James's first full day of Pre-K! For the past 2 months, James has only been able to do half days because of nap time; he required oxygen while sleeping. The great news is that James is now officially off oxygen completely! Also, we have worked with our GI team and the school nurses for them to be able to administer G-tube feeds at school, so he can stay a full day! It's so important to take the time to celebrate the wins because with a medically complex kid, there is always something to be working on! 👍🏻 From ventilator weaning to stopping the ventilator completely, to scheduling decannulation, to getting the trach stoma closed, to graduating from a GJ to a G-tube, to getting off of oxygen... It feels never-ending! That is just the medical side of it. There are also those normal things like walking, talking, eating... James has done great with those as well and cognitively he is acing everything! I recently saw a post from John Israel talking about perpetual dis...
Read more

James Takes His 1st Independent Steps!

Image
Today was Day 7 out of 15 of James' Intensive PT/OT at Wolfson's! Taking his first independent steps! 😭😭😭 Thank you everyone for the love and support! This summer has been INTENSE between learning how to walk and weaning off the feeding tube! Huge progress though!
Read more

Ella is 6 months old!

Image
Ella at 4, 5, and 6 months (and some extras)! Wow time is flying by because in 2 weeks she'll already be 7 months! 😱 She is such an easy baby! I don't mean because there isn't medical stuff because James was soo good too. Ella is just so chill. She can hang. Always smiley and content. Currently she has been making James laugh so hard! It is the best thing ever and one of these days I'll get it on video. James continues to be so sweet with her and I'd love for this to last forever!🤞🏻🤣 Soo much to update! Life has been great! If I ever find some time I would love to! ✌🏻❤️
Read more