Day 78 - Daddy's Lullabies & Future Bone Scans
Thursday, March 18, 2021
James weighed in at 2645grams (5lb 13oz) last night! Growing boy! Today Daddy held James for just about 3 hours while singing songs 🎶 of Elvis, Goo Goo Dolls, Smash Mouth, Marc Cohn, Eminem, and Biggie Smalls. Baby James was feeling it. Check out the video below!
Dad will be out of town this next week for some business meetings in Miami. It's time for Dad to go back to work. 👨💼 Mom will be holding down the NICU.
This evening James is experiencing his first Tampa Thunder & Lightning storm! 🌩⛈
Ventilator #s Update:
FiO2: 48
PEEP: 14
Rate: 40 (James is ranging anywhere from 40‐72; this is the backup rate. That means at 40 he isn't doing anything on his own.)
Tidal Volume: 17
FiO2: 48
PEEP: 14
Rate: 40 (James is ranging anywhere from 40‐72; this is the backup rate. That means at 40 he isn't doing anything on his own.)
Tidal Volume: 17
All of these numbers are relatively high, especially the PEEP which is the pressure.
Future Bone Scans
Another thing we haven't mentioned yet on our blog is that we have been concerned about his limb length and recently mentioned this to our Doctors. Obviously with having the skeletal dysplasia scare during our 19 week ultrasound it's always been at the back of our minds, even though the test results were normal. Currently his femur bones and possibly humerus bones look "smaller". It really is puzzling considering how much testing we had already done between PGS during IVF and having an amniocentesis to run a microarray and a skeletal dysplasia panel.....All results for these tests essentially came back as normal. The test results said he has a part of a recessive gene on one chromosome for osteogenesis imperfecta type 2 and it's a "variant of uncertain significance". Yes, we Googled that to hell and it doesn't give you any answers. The Doctors didn't know what to think of it either. Overall we were told that they didn't see this affecting him dominantly but it is a recessive gene that he would carry on. So now what?
Another thing we haven't mentioned yet on our blog is that we have been concerned about his limb length and recently mentioned this to our Doctors. Obviously with having the skeletal dysplasia scare during our 19 week ultrasound it's always been at the back of our minds, even though the test results were normal. Currently his femur bones and possibly humerus bones look "smaller". It really is puzzling considering how much testing we had already done between PGS during IVF and having an amniocentesis to run a microarray and a skeletal dysplasia panel.....All results for these tests essentially came back as normal. The test results said he has a part of a recessive gene on one chromosome for osteogenesis imperfecta type 2 and it's a "variant of uncertain significance". Yes, we Googled that to hell and it doesn't give you any answers. The Doctors didn't know what to think of it either. Overall we were told that they didn't see this affecting him dominantly but it is a recessive gene that he would carry on. So now what?
Well, since we repeat bone health labs/xrays monthly, the next one is scheduled for 4/1. Our plan is for a full skeletal survey at time during his osteopenia screening so they can check on the shortened appearing long bones - consider ortho and get genetics involvement based on results.
One day at a time!
P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com
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