Day 108 - Withdrawal Symptoms

Saturday, April 17th, 2021

So there may have been some miscommunication... This doctor is now saying he thinks that James' BPD spells are withdrawal symptoms. Mom was originally told that it was too early to have symptoms by one doctor and then was told we weren't even weaning yet by another doctor....? The problem is we don't think anyone did the calculation to see if the IV drip he was getting in the PICU is more or less than the dosage he is currently getting vis his G-tube. WTH? Was he just given an arbitrary amount based on his weight?

A nurse told us her opinion that she thinks these are both withdrawal symptoms and BPD episodes. The withdrawal > causing irritability > causing the BPD spells. Maybe? 🤷🏻‍♀️🤷🏻‍♂️ There are not enough BPD groups out there.

James continues to have back to back BPD episodes with bradys, desats, and the sweats. He has also had several massive diapers which might be a combination of the new feed schedule (breast milk and formula rotated every other feed) and Lasix.

Changes Today:
  • Increasing Morphine and Clonidine to help with withdrawal symptoms
  • Increasing blood gases to every 12 hours
  • Adding Lasix to 2x/day
  • Gained weight at 4000 grams (8lb 13 oz). (1am weigh in) - expecting him to lose weight with the lasix.
  • Blood gases continue to rise now over the past two days at 72.6

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com






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