Day 99 - Happy Due Date Day!

Thursday, April 8th, 2021

James was due date today! He is now 3½ months old! 

Update: Changing diuretics to only once a day. The doctor is feeling like his body is compensating for the changes the diuretic is making. For example, low chloride showed in his general chemistry.

He had a very high blood gas showing his CO2 level in the 80's at 4am and still high at 11am. We are back to his baseline now although this is still high overall.

James continues to have these mini bronchospasms where he turns red, bears down, and holds his breath. They are essentially asthma attacks. So we have added an albuterol treatment (prn) along with the pulmicort.

He has had some of the biggest bowel movements he has ever had in the last 48 hours!

Mom held James for 2 ½ hours this evening. He handled it well and then towards the end desated although he was peacefully sleeping at the time. Dad read the Dr. Suess Birthday Book.

1am-3:30am Update: Mom woke to find James' alarms saying "APNEA" and one of his leads was off. Mom fixed that. An hour later, after a large diaper change and comforting him during his broncospasms it was time for hands-on and to change his split gauze on his trach. James handled that well. It was then already time to change another diaper.

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com