Day 134 - Grandma's First Visit!

Thursday, May 13th, 2021

Grandma who will be referred to as Juju visited the NICU and met her first grand baby for the first time! It was very emotional. All of the RNs and RTs were so sweet with him and were stopping by to meet Juju. She was able to watch Mom do the trach tie change and hold a couple of times. He listened to her stories and made great eye contact.

Changes:

  • Increased Tidal Volume to 50 because he has grown.
  • Starting Melatonin at night to help of his sleep cycle.



James had an excellent night. Our night nurse was on top of it! He only really had two events at 8:00pm and 3:00am. We really think between the increase in tidal volume, the Melatonin, being connected to the farrell bag, and the gas drops being consistently given something has helped the BPD episodes! Sometimes it's hard when there are so many variables to take one away!



P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com











Comments

  1. UnknownMay 14, 2021 at 3:19 PM

    Grandma and mom look so happy im sure his grandpa had something to do with his grandson

    ReplyDelete

Post a Comment

Popular posts from this blog

First Full Day of Pre-K 🎒 🟰 Off of Oxygen!

Image
Yesterday was James's first full day of Pre-K! For the past 2 months, James has only been able to do half days because of nap time; he required oxygen while sleeping. The great news is that James is now officially off oxygen completely! Also, we have worked with our GI team and the school nurses for them to be able to administer G-tube feeds at school, so he can stay a full day! It's so important to take the time to celebrate the wins because with a medically complex kid, there is always something to be working on! 👍🏻 From ventilator weaning to stopping the ventilator completely, to scheduling decannulation, to getting the trach stoma closed, to graduating from a GJ to a G-tube, to getting off of oxygen... It feels never-ending! That is just the medical side of it. There are also those normal things like walking, talking, eating... James has done great with those as well and cognitively he is acing everything! I recently saw a post from John Israel talking about perpetual dis...
Read more

James Takes His 1st Independent Steps!

Image
Today was Day 7 out of 15 of James' Intensive PT/OT at Wolfson's! Taking his first independent steps! 😭😭😭 Thank you everyone for the love and support! This summer has been INTENSE between learning how to walk and weaning off the feeding tube! Huge progress though!
Read more

Ella is 6 months old!

Image
Ella at 4, 5, and 6 months (and some extras)! Wow time is flying by because in 2 weeks she'll already be 7 months! 😱 She is such an easy baby! I don't mean because there isn't medical stuff because James was soo good too. Ella is just so chill. She can hang. Always smiley and content. Currently she has been making James laugh so hard! It is the best thing ever and one of these days I'll get it on video. James continues to be so sweet with her and I'd love for this to last forever!🤞🏻🤣 Soo much to update! Life has been great! If I ever find some time I would love to! ✌🏻❤️
Read more