Sunday, May 16th, 2021
James had a pretty good morning with only a few BPD episodes! Today we had our primary nurse again. Magical! Juju got pooped on while holding James during an explosive diaper. She also had breastmilk accidentally spilled on her every day so far! She said it's full circle! 😂
In the afternoon, Dad got in from his trip to New Jersey surprising Grandpa Don at his 80th surprise birthday party.
James had a solid afternoon. He mostly slept. Dad then led the Trach Tie changes with the RT today. He handled it with lots of comfort and confidence. Got it perfect on the first attempt.
James then did Tummy Time on his Boppy for a few hours. Pretty calm day for Baby James. Dad read him “The Lorax” and showed him all the photos from Grandpa Don’s party.
In the evening, Juju and Aunt Robin helped Mom organize all of the frozen breast milk at home between the two deep freezers. Since the breast milk had been put in as it was created the January milk was at the bottom, then February, and March was at the top. We needed to reverse this order and have January be at the top and accessible. It is the middle of May and the milk that Mom pumped in January will expire in June. Yes we are getting to that 6-month mark! So instead of giving James fresh milk mom will be bringing in her January milk including colostrum! Below are some photos showing our amazing organization skills. 🤣 We had to work fast because it's Florida. 🥵 And this is just the 5 cubic feet freezer!
LATE NIGHT: 11pm small episode and couldn’t get comfortable. After about 15 minutes, we got him to rest. Then at 4:30am, the RT had to do a blood gas and James DID NOT like that. It’s been 20 minutes, and he’s finally calmed down. The RT needs to come back in 30 minutes to try the blood gas again since the results were high. Sometimes that happens when James is upset. I’d be upset too if someone woke me up to poke my foot.
P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them!: JamesWestonAbramowitz@gmail.com
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