Day 138 - Family Heads Back to Jax

Monday, May 17th, 2021

First Juju came to visit in the morning and then Aunt Robin in the afternoon for their last day before heading back to Jacksonville. We are only allowed one visitor at a time along with only one badged parent. This means if grandma is visiting with Mom, Dad is not allowed to visit. It is better than nothing!

Speech Therapy came by and we talked about what are the priorities currently. Right now the goal is for James to get on the home vent. Once he is on the home vent and stable we can then begin to discuss swallow studies. Mom was also informed that when we are doing milk tastes on the pacifier that James should only be getting the residue from the pacifier and not a bunch of large drips. The other day during a milk taste he received too much milk by mouth and threw up. So only the residue from now on!

James slept for majority of the day, so we were worried he would have a rough night. Sometimes he just needs to rest. After all the main priority is for James to grow healthy lungs and rest to gain weight. 

For Night Shift we had one of our favorite RNs and RTs. Both were on top of it! James had several episodes probably due to sleeping all day. 🙄 

Side Note: Aunt Robin whipped this medical car decal for Mom's car. It looks amazing! Mom is hoping she starts her own Etsy store! People needs these 😊

P.S. You can email James you love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com