Day 149 - Visit with Aunt Brittany

Friday, May 28th, 2021

Aunt Brittany (Mom's BFF) came to visit! It was a great visit and James really enjoyed it! Lots of pictures below. Grandpa Don will be coming on Sunday, meeting his grandson for the first time!

In the morning, James did some more tummy time on a pillow. Unfortunately this time there was too much pressure on his G-tube MIC-KEY and it leaked (like all over his onesie, bed, and blankets). Mom thinks that since the G-Tube was pushed in it made the balloon not be against the stomach wall allowing his stomach fluid to come out around the MIC-KEY. Also the stoma looks a little wider. This actually should be helpful since the MiniONE non balloon option that is being ordered is a 14 French currently James has a 12 French. 

Fun fact: The French size of a catheter is determined by a simple multiplication of 3 (diameters in millimeters multiplied by 3 = the French size). For example, if a catheter has a diameter of 4.7 millimeters, then the French (Fr) size is 14.

Mom was holding James and he was getting ready for bed. We had an awesome RN and RT who made Mom feel really comfortable. Sometimes all James needs is to sit up, make sure that everyone is in the room, and to listen to us talking to him in baby voices.  Overall a good night even though he had a few episodes. These were rather mild. He just really needs to have another big bowel movement.

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com