Day 200 - Finding the Sweet Spot

Sunday, July 18th, 2021

Last night Dad slept at the hospital so that Mom could get a night of sleep at home. Not so much for the bed but that it's more than 3 hours of sleep. Can one full night of sleep a week get Mom all caught up to continue 6 days of 21 hour shifts? We will see. 

Around 1:30pm Dad did trach ties with the nurse. As the nurse suctioned him he gagged and then spit up. This wasn't really a vomit as much as a spit up. They were unable to continue with trach care and would resume again at 3:15pm along with a bath.

We held off on the miralax this morning as well as the milk of mag last night, but we did continue with the prune juice today at 11am and 4pm. 

Around 5pm, Mom noticed that his G-tube was leaking through his onesie so she changed that redressed his stoma with a new split gauze. He had several wet diapers also.

At 6:20pm James had a massive diaper. Mom was washing her pumping bottles and syringes and heard James make some of the loudest bowel movements. James was just laying there peacefully awake. Trying to prepare for this Mom laid out a bunch of paper towels underneath him but somehow we still managed to get a hospital blanket covered in poop. Opening up the diaper it was everywhere, almost reaching up to his belly button. So yes we definitely needed to clean the circumcision site so that he doesn't run the risk of getting a UTI.

So did the bowel movement happen because of the prune juice today even though we have been giving prune juice for a while now? Or did it happen because of the miralax from yesterday morning? We don't know. We are going to try and change the miralax and milk of mag to PRN instead. This way they are only given when needed since they're laxatives. More, or less, which ones to add, and 000 which ones to remove.... We need to find the laxative medicine sweet spot.

Mom got James a iPad holder that attaches to the crib!

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com