Day 211 - Back in Mommy's Arms

Thursday, July 29th 2021

James pissed Mom was gone for 4 days.

So the hospital called early this morning letting us know that they ran out of milk during the continuous night feed. The nurse had not calculated correctly. They ended up supplementing with formula. 🤦‍♀️

Mom was feeling better so she ended up bringing more breastmilk to the hospital. 🍼 Right now James is on March milk. As soon as she arrived James woke up and was pretty inconsolable for 3 hours. Mom vented his G-tube with a syringe and got a ton of air out. He was coughing a lot of water and foam into the trach so Mom had suctioned several times. The RN who is one of our favorite in the PICU said that she had played with him, did his PT exercises, and sat him up in his chair. This is great because during the 3 hours that he was pretty irritated that's when our Discharge Coordinator 🧾, Social Worker 📃, Speech Therapist 👶, and OT ⛹️‍♂️ showed up. Mom had to ask them to come back at another time. Music therapy 🎵 came by later in the day but at that point James was sleeping. Later Mom did a bath and trach care with the RT.

Dad came by in the evening. James was on his best behavior.

Updates:

  • James trialed the LTV for 12 hours from 8am to 8pm.
  • Weight today was 7080 grams (15lb 9oz)!
  • James is sticking his tongue between his lips a lot and kicking like crazy.
  • Still waiting on a bowel movement. Hasn't gone since Tuesday.
James slept good until 1am, tomorrow we'll update you on how the rest of the night/ Friday morning went...


P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com


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