Day 212 - Rough Night & Day

Friday, July 30th, 2021

Rough night! James also projectile vomited at 5:30am, it took 2 hours to get him settled after that. 

Today did a trial from 9:00a to 9:00p, 12 hours.

Increase lactose from 5 ml twice a day to 7.5 ml twice a day, increased erythromycin from Q12 to Q8. We gave him a glycerin last night and he immediately had a bowel movement within like a minute.

He was pretty irritated the majority of the day. Mom did a wipe down bath with trach care changing out his trach ties. Mom was constantly venting, suctioning, changing diapers. Mom tried to console him by holding him in the chair. It's a really huge ordeal to hold him in this PICU room, because there's very little room and also with the LTV vent we don't have a lot of ways to maneuver with moving the bed, moving the chairs around, moving the feeding pump, rearranging all the cords, getting the ambu bag ready (since last time he went lifeless) and also getting the emergency call bell in reach. We finally got it all set up. Then within 5 minutes James vomited his meds all over himself right before his 4pm feed. So we put him back into bed and moved everything back. He got another bath, trach tie change, but was completely content after he threw up. His 4pm feed didn't start till 4:30pm.

Stop bys today:

-Turned speech therapy away because he was sleeping

-PICU Doctor went over the changes to his medications 

-GI consolt with a new doctor

-Discharge Coordinator - Mom let her know that we were approved for CMS. We are still not sure however if we need to reapply after discharge.

He rolled over and was sleeping on his circuit.

Slid off of his boppy.

We have a lot of stimulation going on.

This is the few minutes right before he threw up.

James just vomited on himself and Mom. Hard to see in this picture but it is yellow which you can see on his gauze near his trach.

He is sleeping to seagulls and ocean waves.

James is loving the lights on the ceiling.

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com