Day 240 - Horrible Nurse Intern & Back on the LTV

Friday, August 27th, 2021

We originally had our pediatrician appointment and GI appointment scheduled for this morning which we had to cancel since we were admitted into the PICU. 

Dad started off the day at the hospital and had to deal with the worst nurse we have ever had in 8 months. She was an intern in training so it was mind blowing how combative she was. Everything out of her mouth was super confrontational and immature. After 8 months, Mom is on her last nerve and asked to make sure we never have her again. Just awful. There is no way she will last as a nurse anywhere. The hospital's reputation will suffer.

James was doing okay today. Getting him back to a PEEP of 10 on the hospital Servo with FiO2 of 30. In the evening Mom brought the home heater and ventilator stand with oxygen tank to the hospital. We wanted to make sure that James was on our home equipment to see if he is tolerating. Around 9pm we transferred him back onto the LTV with a peep of 10 and 1 liter of oxygen. Everything was fine.

We would start back at clamping his GTube tomorrow morning.


P.S. If you read the blog and are supporting James through his journey we would love you to participate in our video montage of everyone singing his lullaby. Please see the James Weston lullaby post for more details. ❤️

P.P.S. Thank you so much for the lullaby submissions so far! It's so exciting to have all of you be a part of something so special! 😭


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