Day 290 - Missing Supply Order & Boys Weekend

Saturday, October 16th, 2021

No nurse Saturday, but a welcome break!

We received our monthly shipment of respiratory supplies from our Respiratory DME in Melbourne, FL. We were missing 8 major things and received an item that wasn't ours that we are required to return. Good thing we check the order. 😂 So Mom had the pleasure of making several phone calls, going line item by line item to get this corrected with our supplier. 

Dad had a few friends in town for the weekend. Uncle Doug and Uncle Patrick were able to meet James for the first time. After a long day on the water jet skiing they came back with dinner and James was able to join them in his high chair. Uncle Doug beat everyone in cards while Uncle Patrick found our massage chair upstairs. ☺️ 

Mom and James enjoyed the day watching Tangled, which for being in the hospital so long is a lot like being trapped in a tower from the outside world. James loves his Disney songs! 


Mom bought James with window bird feeder since he is setup near the large front window. We have blue jays, finchs, and crows so hopefully James will get to see something up close. Even if it's a squirrel. 🐿️

P.S. If you read the blog and are supporting James through his journey we would love you to participate in our video montage of everyone singing his lullaby. Please see the James Weston lullaby post for more details. ❤️

P.P.S. Thank you so much for the lullaby submissions so far! It's so exciting to have all of you be a part of something so special! 😭

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