Day 315 - Bimonthly Clinical Assessment & PT Interrupting His Nap

Wednesday, November 10th, 2021

So James is now 7.4kg (16lb 5 oz)! He has now doubled his weight from when he had his custom trach put in. Kinda ridiculous that we don't have a new one at this point.

Today is the last day with this nurse. Yes Mom counted down the hours. We also had a stop by from the staffing agency's Clinical Nurse for James' 60 day assessment and Mom's Client Coordinator so she could meet James and get a better understanding of where the nurses would be working. We been told we have a pretty nice setup with an easy case, so nurses would want to work here. They also have an adorable baby that just smiles at them all day. 👶🏻

In the afternoon, James had his 2nd Physical Therapy lesson. Unfortunately at this time he was in the middle of a nap and Mom had to wake him up. He wasn't about the PT this time. He cried a lot and did not tolerate tummy time. He did do well with his sight and sound coordination. The PT would shake a rattle in one hand, let his eyes move to it and then shake a toy in the other hand, having him switch his sight to that toy. Back and forth going right to left and up and down; James kept going. 

The nurse ended up leaving an hour early. 😁✌️

James is loving the selfie feature.
One of Aunt Robin's custom shirts.

P.S. If you read the blog and are supporting James through his journey we would love you to participate in our video montage of everyone singing his lullaby. Please see the James Weston lullaby post for more details. ❤️

P.P.S. Thank you so much for the lullaby submissions so far! It's so exciting to have all of you be a part of something so special! 😭



Comments

Post a Comment

Popular posts from this blog

James Takes His 1st Independent Steps!

Image
Today was Day 7 out of 15 of James' Intensive PT/OT at Wolfson's! Taking his first independent steps! 😭😭😭 Thank you everyone for the love and support! This summer has been INTENSE between learning how to walk and weaning off the feeding tube! Huge progress though!
Read more

Day 234 - Room-in Part 2 & Room Change!

Image
Saturday, August 21st, 2021 Mom and Dad finished up their Room-In on Saturday. Everything went really well! The hardest part is going to be preparing his feeds and making sure that those are given on time along with the meds. As soon as you think you have a break from giving him a med you realize that you now need to prepare fortified breastmilk. Preparing fortified breast milk includes thawing out frozen breast milk moving it to the fridge then taking the thawed breast milk mixing it with measured out Similac Advance powder (180ml of breastmilk to a teaspoon of formula). He only needs 130ml though for 4 hours because the CDC regulation is that breast milk can only be out for 4 hours at a time. Currently his continuous feeding schedule is 32 ml an hour so that is 32 x 4 = 128ml (rounded to 130ml). But because we have to fortify 180 ML at a time there is roughly 50 ml left in a bottle we put back in the fridge until the next feeding. Mom and Dad gave James a bath and his teeny little tu...
Read more

Day 23 - Cozy Baby

Image
Friday, January 22nd Morning : James is  tolerating his feed of 15 ML. Could use a bowel movement before 2pm, which will be 24 hours without one, or else they will be give James a suppository to help. His oxygen was at 47%, which is great progress. Amplitude at 30 and will get lowered to 29 today to see how James tolerates it. Pressure still at 15 until oxygen can get below 40%. Blood gas came back good. As of right now, James is doing well. He’s snuggled up nice and cozy today. .   We also had someone make us a beautiful 3 week card with hand prints from James. ❤️   Evening:    Baby James put on another 15g, now weighing in at 825g. He’s up to 16 ML of feed and tolerating it and will reach his max of 17 ML tonight, assuming he stays the course. His oxygen went down to 37% and amplitude down to 28. This is very great progress too. The suppository helped him with a large bowel movement, which it is common for these little babies to be slightly con...
Read more