Day 328 - James Plays Piano & Pharmacy Phone Tag

Tuesday, November 23rd, 2021

James played on his piano while Mom held him sitting up. He loved it! Much better than kicking at the piano while lying down. James heard his first Christmas and Hanukkah songs. Mom styled James' hair because it's getting so long (in the front). Some he was not a fan of. 😂

Trying to get compounding prescriptions filled...

Mom went to the local Publix pharmacy early in the morning. She let the pharmacist know the situation and that they were supposed to call the Publix pharmacy located inside the hospital for direction. They were very nice but very confused as to why this is being handled like this. After a bunch of back and forth conversations between Mom, the local Publix pharmacist, and the pharmacist at the hospital they came to resolution. The local Publix pharmacist would enter in the prescription information and put the order on "pause". 🤷🏻‍♀️ The hospital Publix pharmacy would contact the Orlando compounding pharmacy to place an order for next day delivery. If they could not do next day shipping then the hospital said they would just take care of it themselves. Mom was told she would receive a call from the Orlando compounding pharmacy when they could confirm the order. Shortly after Mom received a call on her drive home from the Orlando compounding pharmacy letting her know that they would be able to handle the order and it would not get shipped out in a week! 😳 Mom let them know that if they could not do next day shipping that the hospital pharmacy said they would handle and not to process the prescription. The person on the phone from Orlando said they would speak to their manager. When she got back on the phone she said that they could indeed do next day shipping. And to make this long story short there were twice as many back and forth phone calls than actually stated. It seems like nothing is easy. This is only one medication out of 5 that are prescribed, which all need to get switched over to a different Pharmacy asap due to the hospital staffing shortage. He is also on 4 other medications that are over the counter.


P.S. If you read the blog and are supporting James through his journey we would love you to participate in our video montage of everyone singing his lullaby. Please see the James Weston lullaby post for more details. ❤️





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