Day 349 - Uncuffed Trach & Belly Laughs

Tuesday, December 14th, 2021

Today was the first time Juju was able to see what home health nursing is like. Our Tuesday nurse is great with James, always giving him attention and helping with PT.

We deflated his cuff for an hour so that Juju could hear him make some noise but James did not want to talk. He still held great tidal volumes the whole time! James has been belly laughing so hard sometimes pausing the ventilator. Even though we can't hear him you can tell by the photos!

Mom tried to get his liquid Calcium Carbonate refilled but if course there was an issue. So this is an OTC med, that you can't buy over the counter. 🤷🏻‍♀️ So insurance won't cover it, in fact they're asking for much higher price then the over the counter price. Our local Publix is so good, much better than CVS in Mom's opinion. They immediately saw that we were going to get overcharged and decided to give us the prescription for the OTC cost instead which was $12 vs $90. They are going to have to make this exception for us every month.

In the afternoon Juju headed back to Jacksonville.


P.S. James' 1st Birthday is coming up! Wouldn't it be so cool for James to read an email from you when he is older? What a treasure! His email is JamesWestonAbramowitz@gmail.com. Even cooler when he replies back in like 10 years...

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