Day 355 - Plaid Christmas Suit -
Monday, December 20th, 2021
Mom bought James this plaid Christmas onesie in a size 9 months! 🤦🏻♀️ It looked really long in the legs but it's not snapping under his diaper. It's way too small! Getting it on felt like a scene from Tommy Boy. What's crazy is that some 12 month sizes in the same brand are getting really tight on him. And yet in another brand, they are huge! 🤷🏻♀️
The good thing is that James is growing! He gets measured and weighed at certain doctor's appointments but we can also tell just by his clothes getting a little tight. Especially in the torso. His legs and arms are still a little short. We need to schedule a follow up appointment with orthopedics and genetics. Yay co-pays in the new year!
Mom called the DME today to try and get an update on the peer-to-peer review outcome on the trach. But of course no answers. Just a name of someone to chase down who might know something. Left a voicemail. We also followed up about being shorted some supplies and inquiry about why the 2x2 split gauze quality all of a sudden sucks. It's super easy to rip and it leaves white fuzz that is getting into his stoma at the trach site. This is really dangerous. We do have some extra "good" 2x2 split gauze from some friends who work in the hospital which is made in the USA. Of course our DME is supplying the gauze made in China and it's falling apart.
James decided he wanted an eye mask and put this bean bag on his eyes to block the light. 🤣 It's actually not very bright as you can see in the last photo. #ThingsOnlyTrachBabiesCanDo
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| Pointing ☝️ |
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