Day 380 - Continuing with Lots of Tummy Time

Friday, January 14th, 2022

Today our nurse did a great job with getting James on the floor. Our new "activity floor mat puzzle foam tiles" are helpful in giving him more space to roll around. Well that's the goal. 👍

We also had Physical Therapy at 12pm. One of the things we are trying to work on is stretching the muscles on the right side of his neck and strengthening the ones of the left side. If you notice in the previous week's photos James prefers tilting his head to the right. The whole right side of his body is tight and shorter. You will notice in the photos below that when James is lying on his right side we try to put a pillow underneath to lift it up, to stretch. Laying on his left side we would put something underneath his shoulder to try and have his head hang down. He doesn't tolerate this for very long. Our PT said that sometimes massage doesn't help babies with relaxing the muscles to stretch it because it causes them to tighten up. So we almost have to massage the opposite side. Massage to tighten and strengthen. Interesting. 🤔

In the afternoon, we received our DME supplies for his respiratory equipment. Mom went through the 3 pages of items line by line. Good thing, because we were missing 250 suction catheters that they bill our insurance $970 for. So followed up about that one! 💸

P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...