Day 437 - Uncle Dr. David Visits & Mom Records Solo Trach Tie Change

Saturday, March 12th, 2022

James got some snuggles and a nap with Dad. 

You can see in some of the photos of James getting tangled in cords that he has a lot stacked against him even if he was just a full-term 1-year-old. 

1. He is 14 ½ months but only 11 months adjusted.
2. He was sedated for 9 of those months and was pretty much bedbound. Other full-term babies have been active since birth. James has only had about 5 ½ months of moving around.
3. When he does want to do tummy time, roll over, and just be a one-year-old he has to battle cords, tubing, ad know what side his circuit is on so he can figure out which way to go so he does not get decannulated or disconnected from the ventilator. Even Mom is unsure of which way to flip over sometimes, so how can we expect James to figure it out.

It's like American Ninja Warrior Baby. 🏋🏻‍♂️🇺🇲🦅

Uncle Dr. David stopped by for dinner before be left with Dad left for the comedy show. Mom was going to handle trach care herself tonight. Tomorrow is David's Birthday! 🎂 🥳 ♓ 

Video: Mom does a solo trach tie change. Please note that before the video started she had already removed the gauze from under the ties and had wiped and dried the stoma area. Her first time doing a solo trach tie change was back in November when James was in the hospital. When we got home that night after the 2 ER visits, it had been over 24 hours since James had trach care done. 

Cords everywhere!

P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...