Day 439 - GI Appointment & James Has an Outing
Monday, March 14th, 2022
James had a GI appointment in the afternoon. We received the OK 👌 to try some bolus feeds in his G-tube. This will be the start of transitioning him from 24 hour continuous in his J-tube to bolus feeds in his G-tube. We will start by doing 1 Bolus for 2 hours with a 2 hour break with the other 20 hours being continuous. Then if tolerating for a few weeks increasing to 2 Bolus feeds for 2 hours each with (2) 2 hour breaks, with 16 hours on continuous feeds. At this appointment, the doctor also said to make sure the prevacid (which James has been taking since July) is going through the G-tube.and being clamped for 40-60 mins after. We've been putting it through the J-tube because that is what the order was for AND Mom even brought this up to the Doctor several times about how she read acid reflux meds need to be in the G-tube, but he always confirmed the J was fine. Well now all of a sudden he changed his mind. 🤷🏻♀️
After the appointment we took James to Armature Works in Tampa so he could experience something a little different and also so Dad & Mom could get a late lunch. As soon as we got home Mom noticed that James needed extra suctioning. They were thick and yellow which typically means a trach infection. With this new symptom we didn't want to start the new bolus feed schedule because there would be too many variables if he didn't tolerate it. No fever but we watched for other symptoms.
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