Day 440 - Not Feeling Well 🥵🤒🤧

Tuesday, March 15th, 2022

James does not look like he is feeling well. He feels warm and most likely has a fever. 🤧 We have 4 different thermometers that all show different temps. We haven't found one yet that seems accurate. Children and babies with trachs are more susceptible to getting sick, which means if others (especially children) are sick they should not be in contact with an immunocompromised trach ventilator dependent baby. 😷

James has also been scratching around his trach ties as soon below in a GIF. We've been using Nystatin powder on his trach ties and also applying it directly on his neck. 

We have held off on his bolus feeding until we can get his secretions under control. We've had to use saline bullets to flush out his ballard through his circuit. Also emptying the humidification chamber twice a day to wash and clean. Sometimes it's just bad allergies (James is allergic to grass) but Mom is leaning towards this being an infection due to the fact that his respiratory rate is higher and his oxygen has dipped a little. We haven't needed to increase the liter flow because he is still within range and sometimes comes up on his own. Right before bed Mom gave James Tylenol because of a fever. 🤒 Tomorrow she will call the pediatrician to see if we can get a sputum culture. 🧫

James likes a dark room.

P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...