Day 442 - St. Paddy's Day! ☘️ & James Meets Other Children 👨‍👦

Thursday, March 17th, 2022

James had a few visitors today. It was the first time James interacted with other children/babies. Even though he wasn't feeling well he was all smiles. We showed our guests how James used the Passy Muir valve to speak.

In the afternoon, Mom contacted our DME about our respiratory supply order missing items and the hold up on transferring our GI supply order. The responses were ridiculous. Why were supplies missing? Because they decided to give less to make sure everyone gets some (even though they are charging our insurance for the original amount). This was a decision supposedly made in a meeting but never communicated to the customers. Communication is non-existent. Why was our GI supply order still not transferred and shipped out? (We haven't received any GI supplies since January.) Well because people are lazy and everyone blames someone else. That's the easiest way for someone to handle something in this field. They are "waiting to get approval from GI". Hmm, didn't GI send the order requesting those supplies be sent. It's all BS and the follow-up is never ending.

We also setup our video camera for the car. This will allow Mom to drive James solo in an emergency. This camera on Amazon was highly recommended by all of the Trach Moms who also drive solo.

P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...