Day 476 - Helmet Sores 🤕
Wednesday, April 20th, 2022
Dad left early in the morning for Jersey. 🛫
When James woke up we noticed that his red spots had been getting worse. Comparison photos below over the past few days. Mom immediately contacted the local orthotic office who also sells starband helmets. We were directed that any office listed on the Star Band Kids website would be able to get us in and make an adjustment on the helmet. Well unfortunately that was not the case the local office "did not feel comfortable". Not because he is on a ventilator because they didn't even know that. They just didn't want to be responsible for messing up the helmet. They suggested mom contact a Hanger Clinic, which are nationwide. Of course they also deny us since our helmet is not from them. However a doctor from the Hanger Clinic called Mom back and said that she would see him but only with an order from our original office in Tampa and even then she wouldn't guarantee making a change to the helmet. She did suggest that he wears the helmet, but just limit the time. So after all of this Mom emailed the photos to our Tampa office and she was also shocked that we were being denied care at another clinic. She did not want James wearing the helmet until we got back which would be another week.
The red spots are now sores that have become bald spots. The hair follicles are gone. 😥 Hopefully he is still young enough for this to grow back.
Mom reached out to the Facebook Group and everyone said it looks awful. Some thought that we needed a replacement helmet. Others think he just needed to go without the helmet until it heals. We are in a tuff spot being an older kid (12 months adjusted). Our window is closing soon. The "window" being his soft spot that is. Lots of recommendations for different ointments and creams. Mom decided to buy Tubby Todd since it was highly recommended and all natural. We will see!
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| James' favorite toy ever Aquaphor! |
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