Day 506 - Working on a Schedule!

Friday, May 20th, 2022

We are currently working on a schedule to incorporate more food tastes and Passy Muir valve trials. Trying to do purees tastes on a bath day because it's a mess! Moving James into the kitchen even though it's only a few feet away isn't the easiest maneuver. Everything on the cart is plugged into the power supply strip, so we only have to replug that cord into the new outlet. Everything has an internal backup battery except for the humidification chamber. So when the cart is not plugged in his circuit is not heated, which could lead to mucus plugs. This week we've found he loves lemon but doesn't like the taste of banana or almond milk. 


P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com










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