Day 570 - Emergency Call to Our DME
Saturday, July 23rd, 2022
Dad got Mom a hotel for the night since next weekend he would be out of town. It's hard going 2 weeks in a row on little sleep with no down time. Even though James is more stable now if he is disconnected from the ventilator we don't know how long he can breathe on his own and it's not something we just want to test out without a Doctor's supervision.
Dad was experiencing the same thing with the pulse ox not working. Yesterday Mom had asked one of the Facebook groups ("Premies on Oxygen") what the issue could be and would the DME replace the cable. Unfortunately that Facebook group is a joke, so in order to get actual answers Mom needed to post in the Moms of Trach Babies group. Immediately everyone said their cables would die and it was a common issue. So while Mom was out running errands (which is always just getting something for James) she called the DME' answering service and left a message. After talking to about 5 different people the solution was that the Sales Rep from the pulse ox company, Masimo, would need to FaceTime Dad at the house. After about an hour with no luck he said he would drive out to the house from Orlando, which is about 2 hours. Once he got to house he provided a new cable and a back-up machine (Rad-8). The heavy duty Rad-8 was old school; it did not have portable battery. However we still had our touchscreen Rad-97 which we could use for travel, and worked great now because of the new cable. It all worked out!
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