Day 583 - Bucket Full of Toys and His Favorite Is...
Friday, August 5th, 2022
Mom gave James a bucket full of toys so he could explore. He took each one out one by one and inspected them. Which toy was his favorite? A wooden spoon! 🥄
We have been having to vent James even more since the new button probably because air is not able to escape as easily, trapping it in the stomach. Instead of gastric contents only foam is coming out, which just means that excess gas is in the stomach. Mom vented almost 50 mLs. A couple of theories on why James has this excess air 1) ventilator pressures 2) being on continuous J feeds (essentially having a GJ). When the feeds are continuously fed to his small intestine it pushes the gastric contents that was coming through the pyloric valve back up to the stomach causing excess gastric juice and air. The goal is to get him back to a G-tube, which will take several months of slowly increasing G feeds and stretching his stomach.
In the evening, Dad watched movies 🎥 with James while Dad sent Mom to a hotel to catch up on sleep since the upcoming weeks would be pretty busy.
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| James putting weight on his arm! |
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