Day 604 - Figuring Out Object Permanence!
Friday, August 26th, 2022
Dad left in the afternoon to take a mini staycation and would return on Monday. We did an early bath and trach care before he left.
We have to take turns getting breaks, but someday soon we would like to try and vacay somewhere as a family. The tricky thing is without a way to transport the 3 tiered cart in the car there isn't a way to setup his equipment (easily). You may be thinking well if you guys go to the mall and the zoo then how does that work? Well that is because James is in the stroller and he would be restricted to staying in the stroller (in a hotel room for example) AND ALSO he is on temporary humidification called an HME while out of the house. He should not be on this for a long time which is why when he is home he is switched over to a humidification chamber which requires us to set up the ventilator differently then when we are traveling. We are thinking possibly about getting an attachment to our stroller, a glider board for toddler's to stand, which would allow a flat surface for the humidification chamber. But with James moving around so quickly it wouldn't really be safe. The humidification chamber needs to be bolted down to something it can't just be sitting on a table or on the floor or it will tip over and water could go down the circuit causing drowning.
James played with his ukulele and his sesame street pop-up toy. But this time he got scared of Cookie Monster and started crying. This has been happening more and more often with toys that make noise. He also had fun with his Montessori dup version of a Lovevery object permanence toy. This one is from Amazon and it is a 4 in 1 toy. He has really improved since the last time. James managed to figure reach one out!
In the evening James video chatted with Juju, Aunt Robin, Uncle Champ, and his brother Tommy. James loved seeing familiar faces and is always the most alert in the evening.
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