Day 610 - Standing for Disney Songs & More Guitar 🎸

Thursday, September 1st, 2022

Dad gave Mom off for the morning since he would be busy again this upcoming weekend for Uncle Patrick's bachelor festivities.

Well Dad took over he had James doing some PT exercises like practicing standing (leaning). Dad put his phone in the chair playing a Disney music playlist. He wouldn't be able to see the video unless he stood up and looked over the arm of the chair. Every time a new song started on James reach his arms up to the chair and Dad lifted him up. He then stood for the entire song but when he knew the song was coming to an end he would slowly sit back down (with help). How amazing that he knew the end of the song was coming! Yes he has listened to this playlist a lot. 😂 Combination of Moana 🌊, Encanto 💃, Frozen ❄️, and Tangled 💇🏼‍♀️. Moana is probably his favorite. James did this for 45 minutes up and down, up and down. Mom came home just in time to take photos!

Today James showed off during physical therapy and was scooting all around, sitting up on his own, and kneeling. One of the biggest improvements is his crossbody reach. One hand is used to bear weight while the other hand crosses over his body to reach a toy. James was doing this with absolutely no hesitation! We kept putting out the toys a little further and further to see if he would take that arm that's bearing weight, switch the weight to the other arm, and move it in front. We're talking about crawling! It's only a matter of time! He is so close! 


P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Comments

Post a Comment

Popular posts from this blog

First Full Day of Pre-K 🎒 🟰 Off of Oxygen!

Image
Yesterday was James's first full day of Pre-K! For the past 2 months, James has only been able to do half days because of nap time; he required oxygen while sleeping. The great news is that James is now officially off oxygen completely! Also, we have worked with our GI team and the school nurses for them to be able to administer G-tube feeds at school, so he can stay a full day! It's so important to take the time to celebrate the wins because with a medically complex kid, there is always something to be working on! 👍🏻 From ventilator weaning to stopping the ventilator completely, to scheduling decannulation, to getting the trach stoma closed, to graduating from a GJ to a G-tube, to getting off of oxygen... It feels never-ending! That is just the medical side of it. There are also those normal things like walking, talking, eating... James has done great with those as well and cognitively he is acing everything! I recently saw a post from John Israel talking about perpetual dis...
Read more

James Takes His 1st Independent Steps!

Image
Today was Day 7 out of 15 of James' Intensive PT/OT at Wolfson's! Taking his first independent steps! 😭😭😭 Thank you everyone for the love and support! This summer has been INTENSE between learning how to walk and weaning off the feeding tube! Huge progress though!
Read more

Ella is 6 months old!

Image
Ella at 4, 5, and 6 months (and some extras)! Wow time is flying by because in 2 weeks she'll already be 7 months! 😱 She is such an easy baby! I don't mean because there isn't medical stuff because James was soo good too. Ella is just so chill. She can hang. Always smiley and content. Currently she has been making James laugh so hard! It is the best thing ever and one of these days I'll get it on video. James continues to be so sweet with her and I'd love for this to last forever!🤞🏻🤣 Soo much to update! Life has been great! If I ever find some time I would love to! ✌🏻❤️
Read more