Day 662 - Playtime with Daddy
Sunday, October 23rd, 2022
James spent the day with Dad while Mom stepped out of the house. Lots of play time on the floor!
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| Reading is his favorite! 📖 |
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| So excited! |
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| Smiling at the camera |
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| Watching Dad do work 💻 |
First Full Day of Pre-K 🎒 🟰 Off of Oxygen!
Yesterday was James's first full day of Pre-K! For the past 2 months, James has only been able to do half days because of nap time; he required oxygen while sleeping. The great news is that James is now officially off oxygen completely! Also, we have worked with our GI team and the school nurses for them to be able to administer G-tube feeds at school, so he can stay a full day! It's so important to take the time to celebrate the wins because with a medically complex kid, there is always something to be working on! 👍🏻 From ventilator weaning to stopping the ventilator completely, to scheduling decannulation, to getting the trach stoma closed, to graduating from a GJ to a G-tube, to getting off of oxygen... It feels never-ending! That is just the medical side of it. There are also those normal things like walking, talking, eating... James has done great with those as well and cognitively he is acing everything! I recently saw a post from John Israel talking about perpetual dis...
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