Day 684 - Bad Hair Day & 3 Hour Sprint Trials

Monday, November 14th, 2022

Mom took James upstairs to his bedroom while he was doing his morning trial off the vent. Today we increased the trial to 3 hours. Mom had reached out to the FB group of Moms with Trach Babies and asked everyone for their sprinting schedules, specifically for those with babies with severe BPD, no other complications, with similar ventilator settings. Some moms that just take their babies off the ventilator and see how they do. 😳 Others are weaning very slow sometimes only increasing by 10 minutes a week. 🥱 Since we have not been able to speak to our doctor and are only getting spotty information via our nurse practitioner. Mom decided to take the schedule into their own hands. We will be increasing by 1 hour 2x daily each week. That means by the second week of December James will be 12 hours off the vent during the day. It is very common for the next step in after that is to be off the vent during naps, but we've already been doing that. Mom has been monitoring him closely during those naps and his stats looks great. 👍🏻 Once they are off the vent during all naps then the next step is to lean overnight sleep the same schedule as you did during the daytime, which would basically take another 6 weeks. 

Oh yeah and James needs a haircut!💈😂

In the afternoon Mom received a call from the nurse at the fertility clinic and unfortunately we received some horrible news. The second blood test today showed that we would most likely be miscarrying. The HCG level had dropped more than 50%. 😭 They would like us to do a follow-up appointment on Wednesday to double check the blood and until then continue injections.

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com