Day 714 - Lots of Therapy and Bath Time Splashes! 🛁💦

Wednesday, December 14th, 2022

Today James had a hard day at work on his laptop, then early intervention therapy, music therapy, and physical therapy with Dad outside. Lastly Mom gave him a bath upstairs in our bathtub within his bathtub. James splashed like crazy! Mom was soaked. We thought this would be an easier alternative since we can just fill up the bathtub right there but it ended up being way too much work. We will just continue filling up his bathtub in the kitchen and bring it over to his bed. 

Today we also received two letters in the mail from social security one saying that James will continue Medicaid coverage and the other saying that they didn't receive the paperwork and that his coverage will be discontinued. So that was really fun for Mom spending the whole day on the phone trying to get that sorted out!


P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com


Comments

  1. AnonymousDecember 25, 2022 at 8:43 AM

    James it was wonderful to spend time with you and your Mom and Dad.You are a handsome young man and you have a cool sense of humor. Texture is everything in food for me too. The best was the fake out high five . Let's do it again in 2023..

    ReplyDelete

Post a Comment

Popular posts from this blog

First Full Day of Pre-K 🎒 🟰 Off of Oxygen!

Image
Yesterday was James's first full day of Pre-K! For the past 2 months, James has only been able to do half days because of nap time; he required oxygen while sleeping. The great news is that James is now officially off oxygen completely! Also, we have worked with our GI team and the school nurses for them to be able to administer G-tube feeds at school, so he can stay a full day! It's so important to take the time to celebrate the wins because with a medically complex kid, there is always something to be working on! 👍🏻 From ventilator weaning to stopping the ventilator completely, to scheduling decannulation, to getting the trach stoma closed, to graduating from a GJ to a G-tube, to getting off of oxygen... It feels never-ending! That is just the medical side of it. There are also those normal things like walking, talking, eating... James has done great with those as well and cognitively he is acing everything! I recently saw a post from John Israel talking about perpetual dis...
Read more

James Takes His 1st Independent Steps!

Image
Today was Day 7 out of 15 of James' Intensive PT/OT at Wolfson's! Taking his first independent steps! 😭😭😭 Thank you everyone for the love and support! This summer has been INTENSE between learning how to walk and weaning off the feeding tube! Huge progress though!
Read more

Ella is 6 months old!

Image
Ella at 4, 5, and 6 months (and some extras)! Wow time is flying by because in 2 weeks she'll already be 7 months! 😱 She is such an easy baby! I don't mean because there isn't medical stuff because James was soo good too. Ella is just so chill. She can hang. Always smiley and content. Currently she has been making James laugh so hard! It is the best thing ever and one of these days I'll get it on video. James continues to be so sweet with her and I'd love for this to last forever!🤞🏻🤣 Soo much to update! Life has been great! If I ever find some time I would love to! ✌🏻❤️
Read more