Day 719 - PT, Medical Supplies, & Goofy Bedtime Routine
Monday, December 19th, 2022
Today went in for his first official physical therapy lesson at the hospital. Unfortunately it did not go as expected. Two main things happened, one the therapist was saying, "Eww" every time Mom suctioned James. His medport on his G-tube opened up and at leaked like two drips on the play mat that Mom immediately cleaned up. The therapist said that it was "gross". The appointment was also very short because it's a revolving door of people coming to the hospital. Mom was asked if she could just carry him out with all of his equipment while pushing the stroller instead of letting her take the time to yet James in his equipment situated. It's really unfortunate considering that we are at the hospital and she has known James since he was born and all of his medical complexities. The only good thing at the appointment was that James did scoot sitting up on his own without any direction.
Afterwards Mom and James took a drive to St Pete to meet another trach mom at All Children's Hospital to trade some medical supplies. We thought we were only picking up some 4x4s and HMEs but this trach mom gifted us with so much more! She let us know she really liked the physical therapists at John Hopkins and would highly recommend them. However it is not an intensive therapy program either. Seems like the only intensive PT program in the area is in Brandon and the requirement is they have to be at least 3 years old.
When we were putting James to bed he insisted on being tickled. He is such a goofball when it's super late and should be sleeping. 😂
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