Day 759 - James Goes on Stage @ Dad's Award Ceremony 🏆

Saturday, January 28th, 2023

We woke up and needing to start getting ready for the award ceremony. It used to be a banquet that started around 6pm but nowadays it started around 1pm and goes until 7pm. Dad brought a visitor to our room while we were getting ready. It was "Uncle" Trey that Mom used to work with 18 years ago. James wore his suit that he first got to try out on the cruise. 

Overall James did fairly well during the award ceremony. It's not very exciting for a 2-year-old. Mom only needed to take him out once for a diaper change and a break besides the normal intermission. Unfortunately James did not get a nap as regularly scheduled. Dad was expected to go on stage around 6:15pm. James fell asleep about 5 minutes before we needed to go up. Mom carried him up and he was still sleeping but when we got on stage James turned around, saw the lights, and was not a happy camper. Video below. The video is fairly long but at about 3:05 begins the part about Dad's personal life and James' story.

In the evening Dad attended a very nice dinner for all of the top offices. Mom and James ended up having dinner with "Aunt" Megan at the hotel restaurant. Prior to going down for dinner we went back to the room to get changed and waited for Megan to finish wrapping up the event. During that time another trach mom reached out for help with her oxygen concentrator. It is crazy that no one provides instructions on how to set up a pediatric flow meter on an oxygen concentrator. So Mom sent her the YouTube video that she found that worked for her. Once James was changed into some comfy clothes you would have thought that he would want to nap but he was still awake! Downstairs at the restaurant James was full of energy! He sat on a very large leather couch and was such a big boy. James was fired up scooting from side to side. Afterwards Mom and Megan gave him a bath in the tub. Mom sat up in the corner while Megan held him from the side. James splashed like crazy and even decided he wanted to go for a swim at one point by leaning putting his head under face first! Mom quickly took off his soaked HME and quickly finished his bath to get him out. Megan grabbed the suction machine. He was super hyper after the bath. We had no idea where he was getting this energy with having no nap today. 🤷🏻‍♀️

We decided to stay an extra day at the hotel, since we would have a fairly long drive back. So tomorrow our plan is to either stay in the hotel room all day or check out something in Atlanta and drive back Monday.

"Point to Daddy"

"Point to Mommy"

Helping a friend

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com